This is not how it should be—Tim's vibrant spirit constrained by the unpredictable nature of PNES. The laughter that once filled our days now competes with the silence of uncertainty. We never imagined seizures would dictate our routines, our plans, our very lives.
This is not how it could be—dreams of carefree adventures replaced by careful planning around potential episodes. The future we envisioned now obscured by a fog of medical appointments and therapy sessions. Our hearts ache for the simplicity we once took for granted.
But this is how it is—PNES has become an unwelcome companion on our journey. It has reshaped our world, challenging us to find strength we never knew we possessed. In the midst of this storm, we've discovered a resilience that amazes even ourselves.
And our God is in control—even when the seizures seem to control everything else. In the darkest moments, when fear threatens to overwhelm us, we cling to this truth. The same power that orders the universe holds us in gentle hands, guiding us through this unexpected terrain.
This is not where we planned to be—instead of career advancements and social gatherings, we navigate the complexities of disability claims and medical bureaucracy. The path we walk is far from the one we mapped out, lined with obstacles we never anticipated.
When we started this journey—full of hope and optimism, unaware of the challenges that lay ahead. We couldn't have foreseen the tears, the frustrations, and the moments of despair that PNES would bring into our lives.
But this is where we are—learning to find beauty in small victories, cherishing moments of seizure-free peace. We've discovered a depth of love and commitment that only adversity could reveal. In the struggle, we've found a strength that surpasses our own understanding.
And our God is in control— orchestrating a symphony of hope even in the discord of our circumstances. Though we may not understand the melody, we trust in the Composer's perfect plan. In this trust, we find the courage to face each day, knowing we are held by a love that transcends our trials.
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