There are moments in life when the world feels unbearably heavy—when the weight of reality sits on your chest and it’s hard to breathe. This is one of those seasons. It’s the kind of fear that doesn’t roar; it hums quietly beneath everything, showing up in the silence between heartbeats, in the dark when the world goes still and the mind won’t stop racing.
I’m scared.
Not the kind of scared that a deep breath or a good night’s sleep can fix. This fear runs deeper—woven into every thought, every plan, every “what if” I try to push away. Long-term disability insurance is ending soon, and the system that’s supposed to help doesn’t see the truth of what Tim lives with every day. PNES doesn’t fit neatly into their boxes. To them, it’s not a “real” disability. They don’t see how fast things change—the way anxiety or fear can trigger a seizure without warning. They don’t see me watching him go still, helpless to stop it. They don’t see the exhaustion that follows, the fog that lingers, or the quiet heartbreak of realizing that this is our life now.
On paper, he looks fine. In the good moments, when he smiles or laughs, you could almost believe he’s fine. And maybe that’s the cruelest part—how invisible it all is. How easily people assume “better” when all that really means is “surviving.” The judge who will decide his SSDI case will only see a snapshot of him, not the full picture. They won’t see the man who wants so badly to get better, to contribute, to live fully again. They’ll see someone sitting calmly in front of them and assume he’s okay. But they don’t see the fear that lurks just beneath that calm—the fight it takes to hold himself steady, the uncertainty that never really leaves.
And me? I’m tired. Bone-tired. The kind of tired that sleep doesn’t touch because it’s not just physical—it’s emotional, spiritual, endless. I’m managing everything: the finances, the bills, the insurance forms, the household, the decisions. Every day feels like a balancing act where one wrong move could send everything toppling over. I tell myself to just keep going, to be strong, to hold it together, but there are days when even holding on feels like too much.
Sometimes I think about the future and it feels like a hallway with no doors—just an endless stretch of uncertainty. What happens when the insurance stops? What happens if the judge says no again? What happens if I never get to retire, if I spend the rest of my life working just to keep us afloat? What happens when hope feels too heavy to carry?
And then, somewhere deep down, another voice whispers—But what if you’re not alone in this?
That’s the thread I cling to when the fear starts to drown me. Because I know I’m not walking this road without help, even if it doesn’t always feel that way. God hasn’t left me. Even when I can’t see the plan, even when the path ahead is foggy, I know He’s still here. The same God who has carried us this far isn’t about to let go now.
Sometimes faith doesn’t look like confidence. It looks like trembling hands still reaching for God when the future feels impossible. It looks like whispering prayers in the dark, not because you have answers, but because you refuse to stop believing there will be light again.
I’ve learned something through all of this—faith and fear can coexist. It’s okay to admit you’re scared. It’s okay to say you’re tired. It’s okay to not have it all together. Faith doesn’t erase fear; it gives you something stronger to hold onto while you face it.
I think about Tim—how brave he is just to keep trying, to wake up each day and face something he can’t control. That takes courage. Real courage. The kind that doesn’t make headlines but holds families together. And I think about how far we’ve come. Every setback, every denial, every night spent wondering what’s next—and still, somehow, we’re here. Still standing. Still believing that there is purpose even in this.
Maybe that’s what it means to live in faith—not to have a clear path forward, but to take one step at a time, trusting that even in the uncertainty, God is working things together for good. Maybe security doesn’t come from what’s in the bank or what’s written in a policy. Maybe true security comes from knowing that even when everything else falls apart, we are still held.
So yes, I’m scared. But I’m also still believing. I’m still hoping that a judge will finally see what the system hasn’t yet. I’m still trusting that God will make a way where there doesn’t seem to be one. I’m still choosing to keep moving, one day at a time, even when the steps are slow.
I don’t know how it will all unfold. But I do know this—fear may visit often, but it doesn’t get to stay. It doesn’t get the final word. God does.
So tonight, as I stare into the unknown, I’ll keep praying the same quiet prayer I’ve whispered so many times before:
Fix this, Jesus. Fix us. Show us the way through. Carry what we can’t. And when I lose sight of hope, remind me that You haven’t lost sight of me.
And I’ll keep walking. Not because I’m fearless—but because even in the fear, I still have faith that somehow, some way, we will make it through this too.
No comments:
Post a Comment