In the quiet moments between Tim's seizures,
We listen for the footsteps of those who should be near,
Only to hear the deafening silence of empty rooms,
And feel the weight of solitude pressing down.
PNES, a storm that rages within,
Unseen by those who choose not to look,
Leaves us adrift in a sea of misunderstanding,
Yearning for the lighthouse of family support
Where once stood a forest of familiar faces,
Now lies a barren landscape of unanswered calls,
As if our struggles were contagious,
And distance the only cure they could prescribe.
Yet in this isolation, we find an unexpected truth:
Our resilience grows stronger with each passing day,
For in the absence of external pillars,
We've learned to be our own foundation.
Perhaps family is not just blood and shared names,
But those who stand beside us in the darkest hours,
The medical team that guides us through uncertainty
The support groups that offer understanding and hope.
In this journey with PNES, we may feel alone,
But we are forging a new kind of togetherness,
One built on compassion, perseverance, and love,
A family of our own making, unbreakable and true.
No comments:
Post a Comment